The Age of Technology and Your Health Data
Your Role and Responsibilities in Your Health.
It’s About What You Know!
- How do you know if you- are getting the care you deserve?
- How are you accountable to improve one area of your life?
- How do you discuss prevention of negative health outcomes in a meaningful way with a loved one?
- How can you limit risk?
If you need to understand your role in technology and health and wellness strategies in daily living, here’s some starters.
- Access your health information necessary to have in an emergent situation. This is now your responsibility as an advocate for your own care.
- Use your health data and understand how to share your health record, use an app, or patient portal, to manage information, share with other providers, or make corrections if information is inaccurate.
- Know your Privacy and Security rights and your responsibility to protect your information
- Learn where to find treatment, programs, and multiple 24/7 help lines
- Find Public Messages for concepts to reduce the impact of mental health issues and substance abuse
Did you know over half of the hospitals in the United States are recognized as charitable organizations? In return, they are expected to provide benefits to the communities they serve.
Hospitals must submit IRS Form 990 Schedule H annually to demonstrate their community benefit expenditures and maintain their 501c3 designations.
A community health assessment (sometimes called a CHA), provides a community health needs assessment (CHNA), that identifies key health needs and issues through systematic, comprehensive data collection and analysis.
The CHNA is a systematic process, involving the community to identify and analyze community health needs. The process provides a way for community organizations to partner and prioritize health needs, They then prioritize, plan, and act upon the unmet needs within specific communities. Learn more about the Affordable Care Act (ACA).
CMS is transparent in their reporting and allows users to navigate outcomes data. Keep in mind, some data has a “lag” or “look back” and may not reflect new process improvement measures that are underway. We’ll explain this is further detail through our blog page.
- Hospital Compare for over 4000 facilities and a multitude of measures
- HCAHPS the hospital version of the survey, this was the first survey that was implemented
- Inpatient Rehabilitation Facilities
- Long-term Care Hospitals make sure to review the Announcements area
- Nursing Homes including Rehab Services as of October 2020 measures are now reported publicly
Two newer services CMS now offers are related to costs and suppliers.
Costs for visits to providers when planning an outpatient procedure are easily navigated through CMS tools. Datasets extracted from these metrics allow you to compare, across specialties and zip codes, minimum, maximum, and mode pricing of Medicare-certified suppliers nationwide. Datasets are available for office visits related to 80 physician types including Cardiac Surgery, Pain Management, Pulmonary Disease, Radiation Oncology, Geriatric Medicine, Dermatology, and Endocrinology to name a few types and are found by zip code for new and established patients.
A Supplier Directory can be found here too
Are you looking for Chronic Illness Resources? This is an area we would like for you to suggest other additions. We’re starting with allergies:
Allergy-Asthma-Immunology – The Virtual Allergist tool visit
Manage your health and view the pollen count in your area
Look at how Outcome Measures are categorized in other areas.
The National Quality Forum is known for Driving measurable health improvements together to address the care that is needed for people and communities.
The National Quality Forum (NQF) works with members of the healthcare community to drive measurable health improvements together.
NQF is a not-for-profit, membership-based organization that gives all healthcare stakeholders a voice in advancing quality measures and improvement strategies that lead to better outcomes and greater value
You can find materials and information transparently for those with access to the internet. Some top areas where people can learn more or get involved can be found on their site. They are non-biased and state the facts not opinions.
Here is just one example that may be of interest, what others would you like to see if they are underway?
Maternal Morbidity and Mortality: When we speak to environmental factors that contribute to the biology of a person, we learn from this site that severe maternal morbidity affects more than 60,000 women annually across the United States with rising trends over the last two decades.
Educational materials, past meeting agendas, transcripts, and reports are available too.
Note: Works of the U.S. Government are in the public domain and you don’t need permission to reuse them, but an attribution to the agency as the source is appreciated. Your materials, however, shouldn’t give the false impression that the government’s endorsing your commercial products or services. See 42 U.S.C 1320b-10.
Tell ME About YOU!
Now let’s look at some concepts that align with Wellness Your Way and our Body, Mind and Soul core mission:
Body
Visualization is quite simple. Sit in a comfortable position, close your eyes and imagine in as vivid detail as possible, what you would be looking at if the dream you have were already realized. As we move towards SMART technology and the complexity of data and its systems this area aligns with identification of inefficiencies and proposes new approaches in visual communication. To start thinking visually, consider the nature and purpose of your visualization and where it aligns to your goals or what you are being asked to do from a healthcare or wellness perspective. This exercise is important to better understand the role you play in the “patient and family centered care” methodology and future plans within healthcare and delivery systems.
Here’s some concept examples:
- Is the information conceptual (ideas that simplify)
- Am I declaring something? Qualitative
- Is the information data-driven (statistics to inform or enlighten)
- AM I exploring something? Quantitative
When we are caring for our bodies, the historical model uses clinical healthcare services. Think of what you typically encounter through health insurance coverage. A multitude of care options are aligned with “regulatory measures” that encompass metrics around quality, safety, and patient experience (or satisfaction).
This area is where consumers will be called to “sit at the table” and share their thoughts in a concise and professional manner.
We will be walking you through the specifics as they emerge in 2022 and beyond. Did you know there is a public comment period on policy before it takes effect?
Ask us if you need help! We will draft sample responses options to help you gather your thoughts for submission. Be the VOICE in what Patient and Family Centered Care can become and review some free resources.
Mind
Research in brain injuries began in the 1920’s, and was known as dementia pugilistica or “punch drunk” syndrome. Studies were primarily linked to boxing and repeated blows to the head.
Fast forward to the 80’s and 90’s where many parents signed “hold harmless” forms from public schools and City Recreation programs to allow our children to play a popular contact sport, FOOTBALL. We live in a nation obsessed with this contact sport where a concussion is considered part of the game. Often dad signs the form as mom might fear the pain her loved one may experience. Never did we consider the future suffering that many now face, especially in the case of Traumatic Brain Injury. This condition relates to chronic traumatic encephalopathy (CTE) and one of the largest studies, for which there is no current treatment. Unfortunately, complete diagnosis of the condition can only be made during a postmortem autopsy.
The disease gets worse over time and the end stages cause loved ones to experience hopelessness and sorrow. Experts share thoughts on coping to include not responding to inappropriate outbursts of rage with the usual logical arguing but by staying calm, giving a hug, and giving agape love. This heartbreaking situation can tear families apart, as they struggle through the changes that their once happy youngster endures as they age.
Symptoms of CTE are said to occur in four stages and generally appear eight to ten years after the individual experiences repetitive mild traumatic brain injuries. Early stages, stage one and two, include confusion, dizziness, headaches as well as loss of attention and concentration followed by memory loss, social instability, and poor judgement. The latter stages of suffering include progressive dementia, movement disorders, hypomimia, speech impediments, sensory processing disorder, tremors, vertigo, deafness, depression, mood swings, explosivity and suicidality. Patients with CTE may be prone to inappropriate behavior and may display pathological jealousy or paranoia. Research can be found on multiple sites like this one.
Soul and Mindfulness
The world we currently live in can be streesful. Learning to reduce stress through mindfulness helps in salf-care. Did you know there are over 19 million U.S. citizens who are a veteran? The Veterans Affairs site is an amazing resource to educate, and understand practices that align in improving overall well-being. Their mention of “Whole Health” walks the user through a multitude of resources. and they are well versed in providing care tips.
AARP has advice for those who prefer Natural Stress Remedies. From learning how to “power-down” when uncertainty of the future invades your peace, staying active, along with taking in nature and the outdoors, simple steps help us stay focused.
When we take time to pause and reflect on all that nature offers, we learn to reconnect in the here and now. Before the advance in technology people embaced what most people fail to see in our modern world. Things were much simpler throughout history when humanity relied on the moon cycles to guide them with farming, planning, creating, traveling, and so much more. For example, the Old Farmer’s Almanac is a more modern version of how ancient cultures lived and celebrated. If we look further back over the last 2000 years, we can find patterns that help us realize and identify where we came from and/or who we want to be. I am sure you have heard the warning during a full moon that people may “act erratically” since they are not aware their emotions are taking the driver’s seat. Some say the energy around the full illumination of the moon brings forth things that have been hiding in the shadows. Learning to work on our “inner self” can be the most important work we ever do. A modern saying that relates to the optimum goal is to find, “the best version of ourselves.”
Although we continue to evolve, there is an energy within ALL of nature. How and what we align with or tune-in to, is part of the free will we embrace. Throughout the various approaches one could say there is a golden thread that weaves everything together within the journey for each individual soul. As we advance through life, contemplation helps us find a place to begin on a new path. Typically introduced in our formative years, through the circle of support we find ourselves within, what we learn as a child (negative or positive) can disappear as we grow and discover new methods to embrace.
Likewise, where we found comfort as a child can be vastly different as a young adult, a parent, a caregiver, retiree, or senior citizen. The good news is, we can develop new skills, open our mind to new thought processes to consider, and change direction to reach an optimum state of being and consciousness. But will we? … That’s up to you, will you look at ways we can work collaboratively; come to a discussion table and “agree to disagree” with a gentle approach and kindness?
We challenge you to be the change in these challenging times.
“Emotion is nothing more than energy in motion” when we are inspired to take courageous action our emotions can guide us to do so without hesitation. When we learn how to release negative, self-destructing behaviors, we can attract those that align with our true vibration or our highest good that leads us towards meeting our new goals. Goals that meet the highest good for humanity as a “whole” are what Purposeful Concepts LLC propose we work towards.